Abstract
This thesis examines the concept and implementation of a Health Data Space (HDS) inAustria using the International Data Spaces Reference Architecture Model (IDS RAM)
to enable secure and interoperable health data exchange. The thesis identifies critical technical requirements for the establishment of an HDS. A review of the literature
and existing frameworks and legal documents makes it clear that privacy-friendly techniques such as pseudonymization and privacy preserving record linkage (PPRL) are of
paramount importance for maintaining the confidentiality of patient data in secondary
data use. In addition, compliance with global interoperability standards (e.g. FHIR and
OMOP CDM) is essential to enable seamless data exchange between healthcare facilities
and transparent analysis. The IDS RAM is proposed as a robust governance structure to
manage data sovereignty, stakeholder alignment and governance compliance. A prototype of a Health Data Connector was developed and tested to demonstrate the feasibility
of these requirements in the Austrian healthcare system. The prototype was evaluated
in a real use case, focusing on data exchange, pseudonymization and interoperability between different healthcare systems. The results confirm that the proposed Health Data
Connector meets the necessary technical requirements and ensures a secure, standardized and efficient exchange of health data. The paper concludes with a presentation of
possible implications for health data exchange in Austria, the identification of limitations and suggestions for future research.
| Date of Award | 2024 |
|---|---|
| Original language | English (American) |
| Supervisor | Emmanuel Helm (Supervisor) |